What’s in the news this week? Andrew Mow completed the Tri-State Tough Mudder! Gooo Andrew! What is a Tough Mudder? “It is a 10-12 mile (18-20 km) obstacle course designed to test all-around strength, stamina, teamwork, and mental grit. Tough Mudder is Probably the Toughest Event on the Planet. Probably.”- ToughMudder.com. While in the area Andrew shared with me some of his favorite music right now. I’m so excited to use some of his suggestions in my birthday mix! Thanks Andrew! We stopped in at Morimoto while Andrew was in town to get him filled up with some great food before his race!
October 13, 2014 Monday Edition. Find out what’s happening in the world of Rock & Roll, Alternative Rock, Hip Hop, EDM, and Top 40 music every Manic Monday on the MLE Blog! Have you heard any music news?
TOP 40/POP NEWS: Pearl Jam’s Singer Eddie Vedder Lends Support Research Seeking to Cure Rare Devastating Childhood Skin Disease!
Eddie Vedder has given his full support for the EB (Epidermolysis Bullosa) Research Partnership, which is a non-profit whose very existence is to eradicate rare EB skin disease. The disease is so life altering and devastating that it “leaves children with fragile skin that can be sheered off the body with even slight contact.” Vedder appeared in the non-profit’s new video, in which he encourages viewers to donate their money and time to this important cause. Researchers in search of a cure for this disease hope they will create a cure through the scientific process known as “gene editing”.
“When I first heard about it, it was quite hard to grasp the intensity of the condition,” Vedder says in the video. “It’s about the most insane skin disorder you could imagine. And when you realize it also affects the internal organs, you see it as diabolical. It’s very hard to describe until you meet the young folks with it, and they make you realize how much you take for granted. You also realize that these are some of the strongest, coolest, most admirable people on the face of the Earth.”
Those people afflicted with EB usually struggle with “debilitating pain and infections, treating wounds with intensive bandaging.” So far there’s no cure for the disease, however doctors from the University of Minnesota are looking into “genomic mapping techniques” that could potentially be used to fix a child’s DNA prior to birth. If this idea is successful, it would be applied to “5,000 rare diseases and help cure up to 10% of the U.S. population.” Vedder says finding a cure is “something that not only we can do – we just have to.”
To donate to EBRP, please visit the non-profit’s website: http://ebresearch.org/
Read more: http://www.rollingstone.com/culture/videos/eddie-vedder-supports-research-for-curing-rare-skin-disease-eb-20141010#ixzz3FnnuXhx5
Every Monday look forward to the “Manic Monday Music News”, run by yours truly, Scott Rossi! Music is the Universal language which brings the world together, something we can all agree on, so I will always try to find some cool weekly news for you to hear about, here on the MLE Blog. Enjoy!